|purple darkening at nail bed|
The only updates outside of treatment are few. I am planning to shave my head again. There is some stubble just barely growing in in the patchy places after a week and a half and I've found hats are easier with much more hair (so they sit off of my ears) or with less hair where hats can slip on (and off, non-Velcro style). The other is that I did get my period this month, a little delayed but it still kicked in. Biology and treatment response can vary so much from person to person, the range of normal or typical can be quite varied in terms of comfort, fatigue, and how normal body functions go on or don't. Definitely being fit and healthy has to help, yet much is out of my control so I do what I can, as I've said before to try to keep a normal daily routine and to include staying healthy, getting exercise, eating well, washing my hands, sleeping, and staying hydrated.
In two weeks, I will begin a similar course, that is once every 14 days, of Taxol. This should make for much less nausea in terms of side effects, to the point where I won't even be prescribed any of the antimemtics I take now on days 2-5 (and 6 or 7 for me depending on hours on the bus). No self-injected or otherwise shots of Neulasta either. The side expected side effects going forward are during administration: neuropathy - tingling and numbness in the hands and feet. If it is too much, they lower the dose. I asked what is too much, not wanting to tough out something which could be permanently debilitating. If I start to struggle to work a button into a button hole or other fine motor skill, that is the indicator and they drop the dosage down. I am glad there is a line in the sand! The other issue is a possible allergic reaction to the solvent used with the Taxol. However, being in the hospital would allow for a prompt and swift fix, and it would be nothing to worry about once the diffusion is done each day.
Big photo upload to show the various set ups I have. There are needles, so if you're squeamish in that respect you can finish reading here. I'm considering the red pee toilette bowl photo, but that might be too much and you'll have to take my word for it. (Or click on the link at the end of the post.)
Update - shaved my head, by myself - no nicks, nice and smooth.
The second is when I get prepped for the saline (hydration) drip which will wind up being used to infuse me with the rest of the drugs and chemicals.
Following some antimetic pills, the and the saline, I get Fosaprepitant, a super antiemetic through the IV. After that, there is there is the Adriamycin in the two big vials (super red). Notice the gloves and saftey garb Nurse S is wearing when she administers this nasty-nasty! Following the Adriamycin push, that goes directly into the IV, not through
the drip, is the last of it all, the Cytoxan which hangs and takes about an hour to drip (no photo).
At the end of the day, it all goes into the large hazmat bin at the end of my station. Good riddance! The real marker of the end of this round is the used Sharps container with my 4 spent Neulasta injections. They served me well, but glad that they are done, too. Gratuitous photo of a soggy Max post-walk this AM in lieu of red pee shot (click here if you really want to see it.)
|huge hazmat bin|
P.S. Race fans, this is the big weekend - May 18, Lake Quinsimamond for the EARC Eastern Sprints!